BEACON TRANSCRIPT – Pete Frates, the man who came up with the idea of the ALS Ice Bucket Challenge, is himself suffering from the terrible disease. Currently, he is struggling with huge costs between $85,000 and $95,000 per year, as he lies on life support in his bedroom. His family declared they could no longer cope with these major financial issues.
Frates is a former baseball player at Boston College, and has been suffering from ALS since 2012. In 2014, he came up with a simple but innovative idea to help both himself and other people struggling with the same disease. He decided to raise money for the cause in a way that immediately attracted millions of people.
The Ice Bucket Challenge
You had to dump a bucket full of freezing water over your head, and then launch a challenge towards your friends. They either had to do the same, or donate money to the ALS Association. Everything had to be caught on tape and posted on a social media platform.
The trend attracted over 17 million supporters who accepted the challenge and then dared their friends to do the same. Many celebrities entered the game and donated money to the foundation which, in eight weeks, received donations worth more than $115 million.
Frates cannot enjoy his success
The efforts made through the Ice Bucket Challenge did not go unrewarded. Last year, the ALS Association announced that researchers were able to find a gene responsible for producing the disease. Also, a new drug was approved by the FDA for the first time in 20 years.
Unfortunately, Frates cannot enjoy his victory. The family refused to move him to a medical institution, as they say it is vital for him to spend time with his daughter. Currently, they are collaborating with philanthropist Rob Griffin to gather a new fund, the Home Health Care Initiative, with the target of $1 million.
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