BEACON TRANSCRIPT – If you thought that the ice bucket challenge was hard, then check out these people who went out to brave the cold for a good cause. The annual No Pants run for Neurofibromatosis has become somewhat of a tradition, as people from all around the State gather in order to show their support to those less fortunate and to raise awareness.
Support members have all around the United States have gathered on the streets in order to begin the annual no pants run for neurofibromatosis. While most of us look with dread outside the window and cower back in the warmth of our beds, there are some who choose to endure the weather and the low temperature in order to raise awareness.
Several news agencies have reported that apart from the no pants, only undies policy, the runners have also added some eccentrical accessories such as capes, an inflatable crown from Burger King. With the gear in place, they can proceed in the annual half-mile run along the streets. We remind our readers that the run is intended to raise awareness among the public about a dreadful disease called neurofibromatosis.
The event also bears the name of Cupid’s Undie Run, and it usually manages to attract quite a crowd. In Mason City, Iowa, there was a group of runners, a family we gather, by the message posted on their shirt. The message read out “Running for Ryan”. Nick Koenings, the leader of the running team said that he and his team has dedicated this year’s undie run to his young son Ryan, who was diagnosed with the disease when he was only 18 months old.
Koenings described life with Ryan as a long and educative journey. Also, the father told the reporters that despite the odds his son is doing pretty well, considering that he underwent several sessions of chemo and lost vision in one eye in the process.
His son is now 11 years old and he’s apparently doing very well. The same fact could not be said for other unfortunate children from around the State who are diagnosed with the same disease.
Neurofibromatosis, or NF, is a genetic aberration or disorder, which causes tumors to grow on nerve tissue. Sometimes these tumors are benign, but most of the times they are malign, forcing the patient into taking chemo.
Usually, the disease is diagnosed in the early years of life, and the initial symptoms have been described as being mild. But, as any form of cancer, there are quite a lot of complications including hearing impairment, loss of vision, heart defects, cognitive impairment and pain.
The goal of this year’s no pants run for NF is to raise 3.5 million dollars and all the fund raised during this campaign will be donated to hospital and research institutes.